at home

Today is the annual pediatric transplant holiday party for all the kids at Mount Sinai. It is something that I have been looking forward to for a few months. It is such an amazing night, where I can look around the room and see all the beautiful faces of those who saved Matilda - together laughing with their families and sharing joy.

It is that one night a year where I get to meet other parents who have gone through what we have, who have experienced life outside the hospital and all of the challenges that come with it. We talk, we laugh, we share stories, and we remind each other how amazing life is. We have so much to celebrate, so much in common, and so much gratitude to the Recanati/Miller Transplantation Institute at Mount Sinai.

But, we are home.

Right now the most important thing for us to do is get Matilda well. A trip to NYC was just not in the cards and although the disappointment of missing this trip is sharp, we know it is the right thing to do.

Christmas in NYC is so magical. The lights, the tree-lined streets, the beautifully displayed windows. Best of all is Santa at the RMH. Good thing that kids are able to see right past all of that. To them, the tree that sits in our home is just as bright as the one in Rockefeller Center, the anticipation of waiting for Santa is just as exciting, and the joy on their faces is just as apparent.

This year, we will make our own magic right here at home.

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